(SHERBROOKE) Janie Boulianne-Gref seems to be a predestined name: after learning it six months ago she suffered from chronic kidney disease in the terminal phase, the young woman is now awaiting a transplant as may afford to stop his dialysis.
“My father is passing the tests to see if it is compatible to give me a kidney. If it works, we could say that miss Gref has been grafted an Gref! “She laughs.
When Janie meets for the first time, we could never doubt that this beautiful young woman resplendent smile is an illness that nearly cost him his life. Only the central vascular she wears around his right collarbone suggests that it receives any medical treatment.
Yet last fall, when she went to the hospital because of disturbing symptoms, Janie escaped the death of little.
“I had symptoms of a flu of heat, dizziness, runny nose and so on, she says. But not soon quietly, my symptoms are really magnified. (…) I was wondering what I had, to the point that I was afraid of having pneumonia, something a little more serious than flu. ”
The shock of the announcement
At the hospital, the verdict: that she is suffering is actually more serious than just terribly flu. His kidneys are threatening to let go, since they work more than 7 percent of their capacity.
“If I had waited a few more hours, I would die, loose Janie. I already showed signs of a stroke: I had a numb arm, I began to have blurred vision. ”
The Ascotoise in his thirties was immediately hospitalized and will remain for about a month. The first two weeks, she is bedridden in intensive care, where she regularly receives hemodialysis treatments.
While she believed only to have gained weight, Janie had actually accumulated 30 pounds in water retention, which could be removed through dialysis. The liquid had invaded his body and had even infiltrated his lungs.
“This is a difficult experience, because traveled to this point, you are faced with two choices: either you are under treatment and you continue to live, or you let nature do its work and you let yourself die” she says.
Treatments “hard on the body”
Fortunately, Janie chose the first option. Today, she is back at home, but must continue to undergo three dialysis treatments per week for four hours per session. Under his skin is constantly a central vascular access, allowing nurses to connect the body of Janie to a machine for artificial kidney that filter blood.
“Yes, dialysis is revolutionary, but it is not a miracle solution, says Janie. It’s hard on the body. When I go there, I feel like I have 70 years. ”
“By counting the time it takes me to get around there, connect and disconnect me, I spend 18 hours a week just to dialysis. This is a part-time job. ”
His real job, Janie can no longer get there part time. As she was the manager of the bar Liquor Commission, in Sherbrooke, the young woman also had to fight against many prejudices.
“Many people thought that my illness was the fact that I had abused alcohol, since I work in an environment where there are many, she says. I feel that it reassures people assume that, because they say it will not happen if they do not abuse. But my kidney failure does not come from any abuse: it is an autoimmune disease, genetic type. I just pulled the wrong number. ”
A gesture that saves lives
In an attempt to regain some of his liberty miss Gref, as it is called, hopes to receive a transplant as soon as possible kidney. However, the average waiting time for this type of transplant is about three years.
“If my father can give me a kidney, it will be much faster, she said. But if not, I’ll have to wait. It depends if someone has my blood group or not. ”
Janie consider that we do not talk enough about organ donation and gesture “extraordinary” that represents the act of signing her Medicare card to signify consent.
“Sign your card, she insists. Your organs, you do not bring them to heaven. (…) Many people do not want the mutilated body of a loved one because it is sacred, but life also is sacred! And give a second chance to someone, I think it’s even more wonderful. ”
The young woman also intends to partner with Josée Parenteau, president of the Kidney Foundation of Canada, Estrie section to create different outreach projects to donate organs and tissues. By then, she tells her story on her blog, mademoisellegref.blogspot.ca.
On 28 May, Janie also organizes an ecological washing-thon in order to raise money for the March of the kidney, which she will attend the next day. The washing-thon will take place at Chicking restaurant on King Street West, between 9 am and 16 pm. All sub collected will go to the Kidney Foundation.